die within 1 year of diagnosis
What is MND (Motor Neurone Disease)?
Motor neurone disease (MND) is an uncommon condition that affects the brain and nerves. It causes weakness that gets worse over time.
There's no cure for MND, but there are treatments to help reduce the impact it has
on a person's daily life.
MND can significantly shorten life expectancy and, unfortunately, eventually leads to death.
Dean was diagnosed wih this disease in August 2023 after 12-18 months of symptoms, this foundation has been set up as part of his legacy to support and fund research into a cure as well as supporting other sufferers and their families, primarily in the North East of England, with funds that can make a difference to their lives.
Grants are available to those diagnosed with MND for a range of adaptations and equipment - see more ibfo unbder the support pillar below.
You can read more about Dean and the Foundation in the About Us page.
Under the Research pillar the foundation aims to fund priority research projects and work to raise the profile of MND research, as well as contribute to coherent national and international programmes.
To relieve the needs of people who have Motor Neurone Disease (MND) and/or their families, partners, dependants and carers in particular but not exclusively by providing assistance, support and advice to such persons and by supporting research into MND, the useful results of which will be disseminated to the public.
Under the support pillar the foundation plans to provide grants that will help support individuals and families battling MND to support them with everyday living.
Our grants will go towards:
House adaptations
Vehicle adaptions
Riser recliner chairs
Young persons grants
Mobile arm supports
Electric door opening systems
Personal grants
This will be done directly and also through partnering with local charitable organisations (MNDA and other foundations)
Under the awareness pillar the foundation will be a strong, evidence-based and trusted voice for people with MND and their families, with the intention of raising the profile of the disease nationally and internationally.
This will include engaging with local and national media, press and TV and using Dean's story to raise the profile of the foundation and MND.
Facebook
Instagram
LinkedIn
TikTok