UK MND Statistics
5000
people currently live with MND
6
people die every day from MND
33%
die within 1 year of diagnosis
What is MND (Motor Neurone Disease)?
Motor neurone disease (MND) is an uncommon condition that affects the brain and nerves. It causes muscle weakness that progressively worsens over time.
There is currently no cure for MND, but treatments and support are available to help reduce its impact on a person's daily life.
MND can significantly shorten life expectancy and, sadly, is ultimately a terminal illness.
Dean was diagnosed with MND in August 2023 after experiencing symptoms for 12–18 months. Following his diagnosis, he was determined to make a positive difference for others affected by the disease. Tragically, Dean passed away in December 2024 after a courageous battle with MND.
This Foundation has been established as part of his legacy to support and fund research into finding a cure, while also helping people living with MND and their families, primarily across the North East of England. Through grants and practical assistance, the Foundation aims to provide funding that can make a real difference to people's lives.
Grants are available to individuals diagnosed with MND to help fund a range of adaptations, equipment, and other essential support.
More information can be found under the Support section below.
You can read more about Dean, his story, and the Foundation on our About Us page.
The Dean Fox MND Foundation Strategic Plan
3 Main Pillars
Under the Research pillar the foundation aims to fund priority research projects and work to raise the profile of MND research, as well as contribute to coherent national and international programmes.
To relieve the needs of people who have Motor Neurone Disease (MND) and/or their families, partners, dependants and carers in particular but not exclusively by providing assistance, support and advice to such persons and by supporting research into MND, the useful results of which will be disseminated to the public.
Under the support pillar the foundation plans to provide grants that will help support individuals and families battling MND to support them with everyday living.
Our grants will go towards:
House adaptations
Vehicle adaptions
Riser recliner chairs
Young persons grants
Mobile arm supports
Electric door opening systems
Personal grants
This will be done directly and also through partnering with local charitable organisations (MNDA and other foundations)
Under the awareness pillar the foundation will be a strong, evidence-based and trusted voice for people with MND and their families, with the intention of raising the profile of the disease nationally and internationally.
This will include engaging with local and national media, press and TV and using Dean's story to raise the profile of the foundation and MND.
Facebook
Instagram
LinkedIn
TikTok